Welcome
I wish I could say that I'm happy you're here. The reality is though, that you're here because you or someone you love has been impacted by Steven Johnson's Syndrome. But, I do hope that my experience with my journey will be helpful in the coming days and weeks. One of the most frustrating things I found after my diagnosis, was the lack of information available. Everything I could find was generic information or written at such a high level of medicine that a general person can't understand it. The next thing I noticed was any information available seems to be geared toward TENS, which thanks to early diagnosis and immediate discontinuation of the causative medication, I did not develop. As my recovery started, I then noticed that there is even less information on life after Steven Johnson's Syndrome. That's what called me to create this blog. I'm not sure if it'll ever be a help to anyone, but I'm also hopeful it will bring me some comfort. W